RESOURCES for patients and helpful tools
Australian EDS & HSD Network
The Ehlers Danlos Society
The Pots Foundation
Bateman Horne Centre ME/CFS resources
Emerge Australia
Hypermobility Syndrome Association
Bendy Bodies podcast and website
A podcast and website started by Dr Linda Bluestein , a pain physician with lived experience of hEDS .
It's not in Your head - Podcast by Dr Dan Bates
Dr Dan Bates is a Melbourne based sports physician who is experienced treating pain in patients with hEDS/HSD. He has done a podcast which is an excellent resource . Listen to episode 30 especially.
Hypermobility Happy Hour Podcast
Patient and Clinician Resource page by the Dance Doctor (Dr Jason Lam)
Dr Jason Lam has excellent resources for both patients and doctors on hEDS/HSD and their co-morbidities including articles and podcasts.
Dr Meghan Thomas Resources page
Dr Meghan Thomas is a GP in NSW with an interest in hEDS/HSD. Her resource page has useful article sand podcasts for patients and clinicians. She is very involved with advocacy and education of clinicians about these connective tissue disorders.
How Physiotherapy can help (Resources from MOVE physiotherapy Geelong)
TOOLS for a hypermobile life
EVERGREEN RING SPLINTS
Evergreen Ring Splints are handcrafted wire-wrapped splints that stabilize loose, painful, or unstable finger joints, holding them in their natural position so you can grip, pinch, and move with less pain. Designed for a wide range of hand and finger conditions, they replace bulky medical splints with something you'll actually want to wear every day. Great for hypermobile finger joints/ toe joints and they look pretty enough for everyday wear!
Note from Dr Tan: It's important to assess for hyperextension of the finger joints as we often are not aware of them when we are doing everyday things like squeezing lotion tubes/ turning on a switch. Overextension can lead to osteoarthritis prematurely and inflammation of the overstretched ligaments.
This brand is affordable, functional and looks much better than my thermoplastic ring splints( which is a huge plus point! ) . My hand therapist suggested purchasing these as I will be using it long term in addition to regular finger/ hand exercises.