RESOURCES for patients
Australian EDS & HSD Network
The Ehlers Danlos Society
The Pots Foundation
Bateman Horne Centre ME/CFS resources
Emerge Australia
Hypermobility Syndrome Association
Bendy Bodies podcast and website
A podcast and website started by Dr Linda Bluestein , a pain physician with lived experience of hEDS .
It's not in Your head - Podcast by Dr Dan Bates
Dr Dan Bates is a Melbourne based sports physician who is experienced treating pain in patients with hEDS/HSD. He has done a podcast which is an excellent resource . Listen to episode 30 especially.
Hypermobility Happy Hour Podcast
Patient and Clinician Resource page by the Dance Doctor (Dr Jason Lam)
Dr Jason Lam has excellent resources for both patients and doctors on hEDS/HSD and their co-morbidities including articles and podcasts.
Dr Meghan Thomas Resources page
Dr Meghan Thomas is a GP in NSW with an interest in hEDS/HSD. Her resource page has useful article sand podcasts for patients and clinicians. She is very involved with advocacy and education of clinicians about these connective tissue disorders.